A new %$X(! Lyme Disease coming your way

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couchmaster

climber
pdx
Topic Author's Original Post - Jan 26, 2013 - 07:41am PT
As if you didn't have too much to worry about. The last line "he is reviewing old cases and has discovered the strain in other patients who were undiagnosed." makes me think of Lynne Leichtfuss husband Dan. She's mentioned several times on this board that she felt he had Lyme Disease but passed away with it being as yet undiagnosed.

http://newyork.cbslocal.com/2013/01/25/n-j-woman-becomes-first-in-u-s-diagnosed-with-new-deer-tick-disease/

"N.J. Woman Becomes First In U.S. Diagnosed With New Deer Tick Disease
Same Species That Causes Lyme Infected 81-Year-Old With Something Else
January 25, 2013 9:44 PM

FLEMINGTON, N.J. (CBSNewYork) — A New Jersey woman is lucky to be alive after catching a mysterious illness from a tick bite.

Anna Felix, 81, of Kingwood Township, said she feared her lymphoma had returned or she might have dementia when she started getting weak and confused and lost 30 pounds.

“I remember I couldn’t eat too well. And I started needing help to walk,” Felix told CBS 2’s Hazel Sanchez on Friday.

Initial tests were inconclusive, and although she showed symptoms of Lyme disease, Felix tested negative. Lab technicians at Hunterdon Medical Center made a breakthrough discovery when they examined her spinal fluid and found an unusual strain of bacteria they had never seen before.

“It was really spectacular. We knew we were on to something really big and that she would be treated and cured,” lab tech Amy Kurynow said.

Doctor Joseph Gugliotta confirmed it was the bacteria borrelia miyamotoi, a new disease transmitted by the same deer tick that causes Lyme disease. Felix is the first American case of this new tick-transmitted disease.

“Once I verified the organisms were there in the second spinal tap she was treated with a high dose of antibiotics and by five to seven days we were seeing improvement already,” Dr. Gugliotta said.

Felix said she likely was bitten by a tick on her farm. She’s since made a full recovery, and said she’s grateful for the lab’s life-saving discovery.

“It is amazing, and I hope that through this other people will get help, too,” Felix said.

Because of the newly discovered bacteria, Dr. Gugliotta said he is reviewing old cases and has discovered the strain in other patients who were undiagnosed."
happiegrrrl

Trad climber
www.climbaddictdesigns.com
Jan 26, 2013 - 08:10am PT
This is the good side of medicine - research and helping/saving people's lives.

On the other hand, it will be interesting to find out how prevalent this version of Lyme is, if on the rise, and such. It just occurred to me that we might consider a "loaded" tick bite as being akin to being bitten by a poisonous spider or bug, or ingesting a poisonous plant.

Is this accurate, or not, since not ALL ticks carry Lyme. They get the bacteria from eating infected material, but I guess it doesn't kick their ass. Where does the very initial strain of Lyme come from? How does it get INTO to deer that also carry it?
locker

Social climber
state of Kumbaya...
Jan 26, 2013 - 08:16am PT


"How does it get INTO to deer that also carry it?"...



If a Deer has it and bites you, can you catch it???...

LL LL

Sport climber
moving thru
Jan 26, 2013 - 07:59pm PT
Oh couchmaster, thanks for the Thread and mentioning my incredible husband, Dan, who was finally defeated by Lyme. Note I did not use the word victim because Dan never was....he fought with all his strength and finally lost.

So many have contacted me over the past 5 years re: Lyme. I try to give them the best info I can. We found a fantastic Dr. in Thousand Oaks, CA. But Dan's body was already to far spent. Please feel free anyone to contact me re: the disease and resources etc. My children were a great help and garnered a huge amount of facts, resources and wisdom.

If anyone wants this physicians name I heartily recommend him. Just ask on this thread and I'll post it.

Lyme disease is mega complicated and tough to fight....tough to live with and endure. Prayers to all of you out there feeling its effects. Whatever I can do I will. I love each of you and will fight this with you. Lynnie
bluering

Trad climber
Santa Clara, CA
Jan 26, 2013 - 08:57pm PT
I have mucho to say but let's start with;

I HATE F*#KING DEER TICKS!!!44##!^7

Ugh...I hate them.

And I 'm a really nice guy. Just sayin'
bluering

Trad climber
Santa Clara, CA
Jan 26, 2013 - 09:01pm PT
Be good, Lynne! God bless ya!

see ya around.
couchmaster

climber
pdx
Topic Author's Reply - Jan 26, 2013 - 09:28pm PT
Thanks Lynne, if you want to put any knowledge you have up here for anyone googling it, I'm sure it would be appreciated.

Question, how this isn't too intrusive, I apologize if it is: did you know for certain that Dan had Lyme, or was it because all of the symptoms were that he did, but he never tested positive for it?

All the best:
Michelle

Trad climber
Toshi's Station, picking up power converters.
Jan 26, 2013 - 09:29pm PT
Well, now I feel like an ass.
Reilly

Mountain climber
The Other Monrovia- CA
Jan 26, 2013 - 10:42pm PT
Nude hiking is the only safe hiking.
Riley Wyna

Trad climber
A crack near you
Jan 26, 2013 - 10:47pm PT
You never told me about that part of your husbands illness Lynne - I'm so very sorry.


We really do have to be careful and on guard for changes in ourselves - there are so many little illnesses we can get and they will never be picked up in an ER or by the average GP Docter.

This is a scary one - but obviously extremely rare.
LL LL

Sport climber
moving thru
Jan 27, 2013 - 11:01am PT
couchmaster,

A Lyme specialist in Thousand Oaks, CA confirmed that Dan had the disease and treated him with IV Rocephin, but he warned Dan and I that it was most likely to late. He was the only person that prepared us for what we might expect and I am so grateful he did. Facing reality can be more than difficult, but often necessary.

I refer everyone to the above Dr. He is an Internist, but has made Lyme diagnosis and treatment a specialty. He even has a nurse in his office just for Lyme patients. We lived 3 hours away and no matter what if we called Dr. Gonzales made time for us in his schedule.

Dr. Miguel A. Gonzales
227 Janss Rd.
Thousand Oaks, CA
805-497-7508

Lyme is not really rare; just highly under diagnosed.
Shortly after Dan went to heaven, the CA State Dept. of Public Health sent out a bulletin to all physicians stating that Lyme was a threat in CA and they needed to get up to speed on the disease.

Dan had a weakened heart and lungs from radiation therapy for Hodgkins Disease when he was 30 otherwise he may have survived the Lyme Disease.
Dan was a scientist and not only studied Lyme but kept a journal about what he was experiencing (enduring). I made copies of it and gave it to his main Dr. at the hospital Dan eventually died in. I had the Dr. include it all in Dan's chart. I don't know what I hoped to accomplish by that, but it made me feel better.

Thanks for a your kind and thoughtful words. Dan died 5 years ago this past December 29th and sometimes it still feels like yesterday.





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